Monday, October 29, 2012

Things I have learned and going with Black and Gold for Wake Forest

You know that feeling you get after your first hard workout in a long time? Not the rush but the feeling the next day or 8 hours after, the aches, maybe a little fever, headaches, sometimes even nausea. After that hard exercise protein builds up to repair the the body. It goes away in time and you resume normal life. Not me.  The protein in my body is high so I feel that way always just worse. Talking about a pain level of 7-10 depending on the day.Thats me everyday. So now I know why I feel this way, the scary part is what this build up of protein can do to the body over time. The one that gets me is the protein can settle into any organ. This causes enlargement of said organ, examples liver,spleen,heart, or just veins and arteries. The organ invasion can set off a whole list of body functions that can result in cancers and leukemia's . I do not want those! The excess CSF protein can cause increased pressure in my brain. For you non medical people thats bad. It can also cause meningitis. Thats a  not want as well. A few posts ago I talked about my eye. Chances are the protein caused that. This increase can clog up veins and arteries and then they rupture and I go blind again or worse depending on the vein or artery. Alzheimer's and Parkinson's are possible as time ticks.

This high protein level is also in cahoots with inflammation in my body. My nerve biopsy showed inflamed nerve fibers and blood vessels. So this can lead to RA or other inflammatory diseases. Mixed connective tissue disorder, which my mom has, is one. It kind of gives of highlights of all the autoimmune disorders. Lupus is also on the table. The SLE version not the skin version. In fact that might just be the leader of the pack of what can happen to Ben list. 

Freaked out yet friends? Huh, are ya? I am! My MD at Mayo said, don't chase it. It will declare itself one day or maybe this is it. Only time will tell. Live your life try and get some enjoyment back. Use what you need to be a person, pills, cane, rest but try and live. This is gonna be hard but I will try, one day it may say hey I am now Parkinson's disease . Then I will have wished I would have fought through the pain to go outside and watch Reagan play.

Amazing what the chains that hold the body together can do when chronically high. We all have protein and it comes in many forms albumin and other good stuff. I say to you all stop now and tell your body, "Hey be normal! Causes Snitches get stitches! And so do inflamed bodies"   Later!
                                                                                                                                 

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