Day 3 and 4

Day 3- at 6am I was scheduled for a MRI. A thunder storm knocked out power to all but 1 scanner. So delay was the name of  the game. So as the thunder passed cold pushed in and I mean cold! From 60 to 33 by the end of my day. AFter the MRI I had a LP at a different hospital campus. So a 10 minute bus ride and time for a stabbing to my spine. That is done and back on the bus back to Mayo main for sensory test. I was burned and frozen on the foot and leg. I failed. 97% of people have better feeling/sense of heat and cold to the lower limbs than me.Next, a visual field test. I stare at a light and click a button any time I see a light flash. I generally fail this as well, my perphial vision blows. AHH! DONE! Then out into the cold and back to hotel. I am bushed,beat,whipped,etc......

Day 4- Starts with MD return visit at 810. He runs 30 minutes behind and I get no TRUE diagnosis. I do get this, I have too much protein in my body. Blood and CSF, this leads to the joint pain and eye junk. The protein can build up in veins, arteries, and joints. All 3 blow and I live in pain. Also, inflammation is a constant. It shows in my eye, showed in my nerve biopsy and now in my csf. This inflammation can be a precussor to autoimmune disease. I basically have it just without a real name. So in summation, autoimmune diseases without a name. The inflammation and high protein are signs of this. The disease has not entirely showed its ugly face. It may never, I may stay right where I am until I die. Then again it may roll into a mixed connecive tissue disorder type thing. Oddly enough the inflammation and protein live in my connective tissue. So, I head home Sunday with many more puzzle pieces but it is still not finished.